PO Box 38037, Albany, NY 12203
Our mission is to support and promote research toward treatment and cure of Scleroderma, Degos Disease, and other related disorders; to promote awareness and understanding of these disorders, especially among health-care professionals; and to encourage collaborative efforts, nationally and internationally, aimed at realizing these goals.
The Ann Steffens Scleroderma Research Foundation is a 501(c)(3) tax exempt charitable organization.
About Ann Steffens:
The Ann Steffens Scleroderma Research Foundation was formed in memory of Ann Elizabeth Steffens who was diagnosed with scleroderma in 1984 and passed away in 1997. Ann's nature was to help others, and she participated in several scleroderma research studies after being diagnosed with scleroderma. Ann was also a member of the Tri-State Chapter of the Scleroderma Foundation. Her mother, Helen Polenz, still attends the support group meetings. Helen donated funds to establish this research foundation, hoping to spare others the pain of losing a loved one to this disease.
**The Ann Steffens Scleroderma Research Foundation, Inc. is also known as the Steffens Scleroderma Foundation.