Steffens Scleroderma Foundation's Third Annual Fundraiser

October 26, 2019 at 6:00 PM
River Stone Manor, Glenville, NY

Event Details

Guest of Honor: U.S. Congressman Paul Tonko
2019 Ernest J. DuPont Award Recipient: Celeste Freeman, OTR/L,CHT

Silent Auction

Cocktail hour with cash bar
Full course dinner, includes salad, rolls, and dessert
Dress code: semi-formal or "after five"

Proceeds will benefit the foundation's mission to support research toward treatment and cure of
scleroderma, Degos disease, and related disorders.

Please join us for the celebration! RSVP today by email: or call

Interprofessional Education Forum

Focus on Scleroderma

November 4, 2019

The Gym at the Albany College of Pharmacy & Health Sciences
106 New Scotland Avenue, Albany, NY 

Presented by:
The Sage Colleges Health Sciences and The Albany College of Pharmacy & Health Sciences

In partnership with:
The Steffens Scleroderma Research Foundation &
The Steffens Scleroderma Clinic at The Center for Rheumatology

2019 Cruise for a Cure is a Success!

Thanks to all those who attended and supported the Steffens Scleroderma Foundations’s sell-
out Cruise for a Cure on the Hudson this summer. The event raised $11,000 to benefit scleroderma and
Degos disease research and education!

We’re grateful to our event sponsor Dutch Apple Cruises and the Renna family for their generosity in
memory of Lou Renna who lost his battle with scleroderma.

Special thanks to DeMarco’s Restaurant for their generous sponsorship of the delicious Italian buffet!

And thanks to all those who donated and supported this annual event.

We hope to see you next year!

The foundation presents

Degos Global Summit logo.jpg

The 2018 International Conference on Degos Disease


at The National Institutes of Health


Tri-State Scleroderma Foundation:

  "Scleroderma is a Vascular Disease Inside and Out" Lee Shapiro, MD Oct 2015



Steffens Scleroderma Foundation participated in a Rare Disease Day event

at the NY State House on March 2, 2016 in Albany, NY

Members advocating and raising awareness in support of RARE DISEASE DAY! 

Rare Disease Day 2016 cropped2.png Rare Disease Day with Sen Hannon cropped.png

                                                     Sen. Kemp Hannon, Senate Health Committee Chair