7th Annual Cruise

In Memory of Captain Lou Renna & Doug Mayville

5 August, 2018

 Rain or Shine, boat will begin boarding at 3:30 p.m. - Departs 4:00 p.m. - Returns 6:00 p.m.

Sponsored by Dutch Apple Cruise Lines  

http://dutchapplecruises.com/

Round trip cruise departs from 141 Broadway, Albany, NY 12202 and sails South to Van Weis Point.

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 There will be Fruit, Cheese & Sandwich Platters, plus a full cash bar & snack bar available! 

All proceeds will go to the Steffens Scleroderma Research Foundation.

If you are unable to attend and would still like to donate please visit steffens-scleroderma.org

Dutch Apple Cruises

 Click here

 

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The Steffens Scleroderma Foundation

Save the date

Annual Fundraiser

In Honor of Jessica Farrell, PharmD

Associate Medical Officer for the Steffens Foundation

Friday, October 12th, 2018 at 6:00pm

Jack's Oyster House

42 State Street, Albany, NY  12207

Silent Auction

Cocktail hour with cash bar

Full course dinner, includes salad, rolls and dessert

Dress Code is semi-formal or “after five”

RSVP by September 15st, 2018 

Proceeds will benefit the research foundation’s mission to support research toward treatment and cure of Scleroderma, Degos Disease and related disorders.

Plan to join us for this celebration

(Click here for ticketing information)

 

The foundation presents

Degos Global Summit logo.jpg

The 2018 International Conference on Degos Disease

4/27/2018

at The National Institutes of Health


 

Tri-State Scleroderma Foundation:

  "Scleroderma is a Vascular Disease Inside and Out" Lee Shapiro, MD Oct 2015

 

RARE DISEASE DAY 2016

Steffens Scleroderma Foundation participated in a Rare Disease Day event

at the NY State House on March 2, 2016 in Albany, NY

Members advocating and raising awareness in support of RARE DISEASE DAY! 

Rare Disease Day 2016 cropped2.png Rare Disease Day with Sen Hannon cropped.png

                                                     Sen. Kemp Hannon, Senate Health Committee Chair