Save the Date

The Ann Steffens Scleroderma Research Foundation is holding a dinner in honor of

Dr Shapiro as the National Scleroderma Foundation Doctor of the Year 

October 27, 2017

Riverstone Manor, Scotia NY


Proceeds will benefit the research foundation’s mission to support research toward treatment and cure of Scleroderma, Degos Disease and related disorders.


Plan to join us for this celebration



Our 6th Annual Cruise 


30 July, 2017


Dutch Apple Cruise Lines

With Captain Lou Renna!

Dutch Apple Cruises

Click here



The foundation presents

Degos Global Summit logo.jpg

The 2018 International Conference on Degos Disease


at The National Institutes of Health


Tri-State Scleroderma Foundation:

  "Scleroderma is a Vascular Disease Inside and Out" Lee Shapiro, MD Oct 2015



Steffens Scleroderma Foundation participated in a Rare Disease Day event

at the NY State House on March 2, 2016 in Albany, NY

Members advocating and raising awareness in support of RARE DISEASE DAY! 

Rare Disease Day 2016 cropped2.png Rare Disease Day with Sen Hannon cropped.png

                                                     Sen. Kemp Hannon, Senate Health Committee Chair