The Steffens Scleroderma Foundation

Cordially invites you to our

First Annual Fundraiser

In Honor of Dr Lee Shapiro,

National Scleroderma Doctor of the Year

Saturday, October 28th, 2017 at 6:00pm

River Stone Manor

1437 Amsterdam Road, Glenville, NY  12302

Silent Auction

Cocktail hour with cash bar

Full course dinner, includes salad, rolls and dessert

Dress Code is semi-formal or “after five”

RSVP by October 14th, 2017 

Proceeds will benefit the research foundation’s mission to support research toward treatment and cure of Scleroderma, Degos Disease and related disorders.

Plan to join us for this celebration

(Click here for ticketing information)


Our 6th Annual Cruise 


30 July, 2017


Dutch Apple Cruise Lines

With Captain Lou Renna!

Dutch Apple Cruises

Click here



The foundation presents

Degos Global Summit logo.jpg

The 2018 International Conference on Degos Disease


at The National Institutes of Health


Tri-State Scleroderma Foundation:

  "Scleroderma is a Vascular Disease Inside and Out" Lee Shapiro, MD Oct 2015



Steffens Scleroderma Foundation participated in a Rare Disease Day event

at the NY State House on March 2, 2016 in Albany, NY

Members advocating and raising awareness in support of RARE DISEASE DAY! 

Rare Disease Day 2016 cropped2.png Rare Disease Day with Sen Hannon cropped.png

                                                     Sen. Kemp Hannon, Senate Health Committee Chair