Each year, the Steffens Scleroderma Foundation hosts a fall dinner to honor those who have been stalwart supporters of its mission and to raise funds to advance research and education. The popular event includes a cocktail hour, full course dinner, a silent auction, and an awards presentation honoring those who are making a difference in the scleroderma and Degos disease communities.
Watch the Fighting Degos Disease video to learn about Ernie DuPont's hard-fought battle against Degos.
Degos disease is an ultra-rare vascular disease presenting as skin lesions (porcelain plaques) that appear:
Degos disease has two forms:
Approximately 1/3 of patients eventually progress to systemic disease.
Untreated systemic Degos disease may result in GI perforations, sepsis, damage to the lining around the lungs (pleura), and strokes.
Potential for overlap with Degos disease can be found in individuals with scleroderma, dermatomyositis, and lupus. Better understanding of Degos disease may lead to improved therapies and greater insight into the vascular aspect of these other disorders.
Steffens Scleroderma Foundation
P.O. Box 38037
Albany, NY 12203