Each year, the Steffens Scleroderma Foundation hosts a fall dinner to honor those who have been stalwart supporters of its mission and to raise funds to advance research and education. The popular event includes a cocktail hour, full course dinner, a silent auction, and an awards presentation honoring those who are making a difference in the scleroderma and Degos disease communities.
Every summer, the Steffens Scleroderma Foundation hosts a Cruise for the Cure fundraising event. There aren’t too many better ways to spend a summer afternoon than out on a boat, cruising down the historic Hudson River, enjoying drinks and delicious food, and raising money for a great cause!
Due to the pandemic and the need for social distancing, the annual cruise went virtual in 2020! More than 100 participants took a virtual ride on the Hudson River to raise awareness and funding for scleroderma and Degos disease research and education. Along the way they heard from U.S. Congressman Paul Tonko who provided an udpate on his proposed legislation, the Helping Experts Accelerate Rare Treatments (HEART) Act, that aims to strengthen the review of rare disease treatment. Dr. Lee Shapiro also spoke about the foundation's efforts to improve the patient experience for those facing scleroderma and Degos disease by educating healthcare providers and supporting collaboration among researchers. And winners were announced for the event raffle and online auction.
We’re grateful to our event sponsors Dutch Apple Cruises, DeMarco's Restaurant, and the Renna family for their continued generosity in memory of Lou Renna who lost his battle with scleroderma. Special thanks to Planet Believe for providing custom event t-shirts for participants!
Steffens Scleroderma Foundation
P.O. Box 38037
Albany, NY 12203