Each year, the Steffens Scleroderma Foundation hosts a fall dinner to honor those who have been stalwart supporters of its mission and to raise funds to advance research and education. The popular event includes a cocktail hour, full course dinner, a silent auction, and an awards presentation honoring those who are making a difference in the scleroderma and Degos disease communities.
The 4th annual fall fundraising event went virtual in light of the current pandemic and the need for social distancing. Friends of the foundation came together for a Zoom event on November 14, 2020. The evening of comedy and entertainment featured a hilarious standup routine called "Comedy, Clocks and Casseroles" by Carole Deyoe. Carole inspired and reminded us that laughter is truly the best medicine!
Scleroderma patient Amy Gietzen was awarded the 2020 Ernie J. DuPont Award for her tireless efforts to advocate, support, and educate others on a local, state, and national level!
Bruce Cowan, Scleroderma Foundation Tri-State Chapter executive director, was honored as the 2020 Louis P. Renna Recognition Award for his outstanding efforts to advance education and research for scleroderma in order to help those struggling with this rare condition.
The event also included an online auction, trivia, a musical act, an update on the exciting medical research for scleroderma and Degos disease treatments, and lots of laughter and fun! Thank you to our generous sponsors—Holistic Wealth, Law Firm of Alex Dell, Knapek Gabriele & Bottini, Marra's Pharmacy and the Albany Financial Group—and to everyone who participated! We hope to be back in person next year! Stay tuned.
The 2019 Fall Dinner raised more than $17,000!
U.S. Congressman Paul Tonko was the guest of honor at the 2019 dinner for his advocacy on behalf of patients and support medical research funding.
Steffens Scleroderma Foundation board member Celeste Freeman, OTR/L, CHT received the 2019 Ernie J. DuPont Award for her unparalleled commitment to patients.
Steffens Scleroderma Foundation
P.O. Box 38037
Albany, NY 12203