Steffens Scleroderma Foundation Newsletters

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Steffens Mailing List

March 2024 Newsletter 

  • IPE 2024 Virtual Program Scheduled Wednesday, April 10th
  • Scleroderma Research Update - Scleroderma in Pigmented Skin Populations 
  • SAVE the DATE- Sunday, July 14th Cruise for a Cure 
  • Degos Disease Foundation New Logo and Research Update
  • New Board of Director - Welcome Paula Birch Billingsley 
  • Fall Festival scheduled September 29th 
  • Recap of 8th Annual Fall Gala
  • Estate of the late Dr. Donald Thurston 
  • American College of Rheumatology Annual Conference
  • Dr. Jessica Farrell awarded Distinguished Educator Award 
  • Welcoming New Volunteers
  • The New York Dental Journal published article "Steffens Scleroderma Foundation Interprofessional Education Event"  authors David Leader, D.M.D,. M.P.H.; Daniela Bittar, D.D.S.; Evamarie Cole 
  • Mogil's Mobcast 
  • Fall Gala
  • Recap of Cruise for a Real Cure 2023
  • Welcoming a New Board Member
  • National Scleroderma Annual Conference
  • Measurements of IPE Impact
  • National Scleroderma Month Happenings
  • 2023 Interprofessional Education Forum
  • Dr. David Leader
  • Degos Disease Q&A
  • Research Updates
  • The Legacy of the Meenans
  • 2023 Interprofessional Education Forum
  • Dr. Michael Hughes
  • Research Updates
  • Degos Disease Support NetworkInterprofessional Education Forum
  • Celeste Freeman receives ASHT Paul Brand Award
  • Mogil's MobCast
  • Dr. Michael Allen Joins Steffens Medical Advisory Board
  • Amy Geitzen presenting at the American College of Rheumatology
  • Giovanna Fichera, OTD, Research Update
  • Interprofessional Education Forum
  • How does IPE move forward?
  • The Art of Advocacy Seminar
  • NIH Research Study -
  • Degos Disease Patient Experience
  • Introducing our new Board Member, Bruce Cowan
  • Student Research Projects
  • Of  Zebras and Elephants: Parallels between pediatric Kohlmeier-Degos disease and vascular manifestations of Covid-19               by Dr. John Patrick Whelan
  • Scleroderma Renal Crisis 
  • Current Pharmacy Studies
  • Pictures from the Gala
  • Expanding Medical Advisory Board
    • Dr. Lesley A. Saketkoo
    • Dr. Tracy M. Frech
    • Dr. John Patrick Whelan
    • Stephen Veit
  • Welcome Steve Rosenblum
  • Cruise for a Real Cure July 17, 2021
  • Steffens Presents at National Conference
  • Two New Board Members
  • 4th Annual Interprofessional Education Conference
  • Carla Gage, our new President of the Steffens Scleroderma Foundation
  • Scleroderma Updates
  • Degos Diseas Updates
  • Spotlight on Board Member, Theresa Slayton, Degos Disease Patient
  • New Board Member, Amy Gietzen
  • Current Projects ongoing 2021
  • COVID-19 Vaccine
  • Student Research
  • What is Scleroderma?
  • What is Degos Disease
  • Dr. Lee Shapiro, Chief Medical Officer
  • Research

Featured News

Steffens Scleroderma Foundation presented on the Interprofessional Education Program: Patients Educating Future Healthcare Professionals and the Art of Advocacy at the National Scleroderma Conference in Orlando, FL (July, 2023). 


Steffens Scleroderma Foundation Board Member Michelle Morgan speaks with a local news reporter about scleroderma and Degos disease. Watch the interview.

Sister Noonan.pngWatch Sister Mary Rose Noonan's story, featured on WMHT TV, and hear how she's coping with scleroderma symptoms.