News
Steffens Scleroderma Foundation Newsletters
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- Interprofessional Education Forum
- How does IPE move forward?
- The Art of Advocacy Seminar
- NIH Research Study -
- Degos Disease Patient Experience
- Introducing our new Board Member, Bruce Cowan
- Student Research Projects
- Of Zebras and Elephants: Parallels between pediatric Kohlmeier-Degos disease and vascular manifestations of Covid-19 by Dr. John Patrick Whelan
- Scleroderma Renal Crisis
- Current Pharmacy Studies
- Pictures from the Gala
- Expanding Medical Advisory Board
- Dr. Lesley A. Saketkoo
- Dr. Tracy M. Frech
- Dr. John Patrick Whelan
- Stephen Veit
- Welcome Steve Rosenblum
- Cruise for a Real Cure July 17, 2021
- Steffens Presents at National Conference
- Two New Board Members
- 4th Annual Interprofessional Education Conference
- Carla Gage, our new President of the Steffens Scleroderma Foundation
- Scleroderma Updates
- Degos Diseas Updates
- Spotlight on Board Member, Theresa Slayton, Degos Disease Patient
- New Board Member, Amy Gietzen
- Current Projects ongoing 2021
- COVID-19 Vaccine
- Student Research
- What is Scleroderma?
- What is Degos Disease
- Dr. Lee Shapiro, Chief Medical Officer
- Research
Scleroderma In the News
Cell Therapy Results Spur Pivotal Trial in Diffuse SCL Hand Function
For information about COVID-19 and the impact on people living with scleroderma, please visit the Scleroderma Foundation.
Jessica Farrell, Pharm.D, Instrumental in Drug for Scleroderma covered by Medicare PartD
Scleroderma Affects Skin and More
NORD Rare Disease Database: Scleroderma
Degos Disease In the News
Long Island Boy’s Disease Might Be Degos
Clinical Center patient experiences enrich International Degos Disease Symposium
Capital Region Doctor’s Experience with rare Degos disease prompts conference
Featured News
Steffens Scleroderma Foundation
is presenting at the
National Scleroderma Conference on Saturday, July 16 at 5:30pm
regarding the
Interprofessional Education Program: Patients Educating Future Healthcare Professionals
and
The Art of Advocacy.
To register for the event, go to: https://scleroderma.org/national-conference/
Steffens Scleroderma Foundation Board Member Michelle Morgan speaks with a local news reporter about scleroderma and Degos disease. Watch the interview.
