The Steffens Foundation seeks to support and promote research toward the treatment and cure of Scleroderma and Degos Disease. Of equal importance is our mission to promote awareness and understanding of these disorders, especially among healthcare professionals. Familiarity with the clinical presentation of these illnesses by frontline practitioners improves the likelihood of early recognition and diagnosis, as well as timely access to the specialized intervention necessary with rare and ultra rare diseases.
The purpose of this page is to enhance understanding of Scleroderma and Degos Disease for emerging and practicing healthcare professionals. Some of the content may have originally been intended for the support of individuals with these illnesses. Some of the other resources available on this page have a twofold purpose; educating those with the conditions, as well as educating their loved ones, as well as healthcare providers who are interested in the subject matter.
It is our goal to provide excellent educational content for all individuals desiring to learn about Scleroderma, Degos Disease, and related illnesses. We hope you find the content on this page helpful in your pursuit of this goal.
For information about COVID-19 and the impact on people living with scleroderma, please visit the Scleroderma Foundation.
Steffens Scleroderma Foundation Board Member Michelle Morgan speaks with a local news reporter about scleroderma and Degos disease. Watch the interview.
Steffens Scleroderma Foundation
P.O. Box 38037
Albany, NY 12203