News
Stay Connected.
Fill out this form to receive our quarterly email newsletter straight to your inbox. Our newsletter contains the latest information about research and events for Steffens Scleroderma Foundation and Degos Disease Foundation. Also, be sure to let us know if you’re interested in getting involved by clicking the “Volunteer Form” button below!
Featured News
-
Retiring Scleroderma Expert Passes Torch to Next Generation
Dr. Lee Shapiro (left) and Dr. Michael Allen
Dr. Lee Shapiro is retiring from Albany Medical Center’s scleroderma clinic after nearly 50 years, passing leadership to Dr. Michael Allen. His contributions, including the Scleroderma Renal Crisis Prevention Card and the Steffens Scleroderma Foundation, have greatly advanced scleroderma care. Congratulations, Dr. Shapiro, on a remarkable career!
-
Scleroderma Inservice
Celeste Freeman, OTR/L, CHT
On Tuesday September 24th, 2024 Celeste Freeman, provided a lunch time in-service on scleroderma for the rehabilitation professionals at Nathan Littauer Hospital. Joining her was Debbie Mancini, RN, a patient participant in the 2024 Steffens Foundation IPE, to provide the clinicians with her perspective on the illness. There were 16 staff members of both OTs and PTs in attendance.
-
Advocate of the Year Award
Award winner Amy Gietzen with CEO Mary Wheatley, IOM, CAE and researcher Carol Feghali-Bostwick, PhD
Amy Gietzen, Steffens Board Member was awarded the Advocate of The Year Award by the National Scleroderma Foundation this past July 2024! The award is given to an individual who is a leader in the scleroderma community and is active in advocacy and awareness efforts. The award recognizes those who embody the spirit of "speaking up for scleroderma". Congratulations Amy!
Download Previous Newsletters
-
March 2025 Newsletter
IPE 2025 Virtual Program Scheduled Wednesday, April 9th
Updated Steffens Website Launching April 1st, 2025
Steffens Hosts Strategic Planning Weekend – February 15th
Welcome New Board Members – Dr. Jane Eason, MD & Melissa Marquis, MS, RN and Author
New Resource – Hand Therapy Course for Scleroderma Now Online
Dr. Jessica Farrell to Open ACR SOTA Symposium this Spring
Farewell and Thanks – Bruce Cowan & Patricia Clausi
-
December 2024 Newsletter
Dr. Lee Shapiro retirement announcement
About Scleroderma Webinar
Save the date: April 9, 2025 Next IPE
Steffens Foundation Summer Research Fellowship
Amy Gietzen awarded The Maureen Sauve Inspiration Award (SPIN)
-
October 2024 Newsletter
Cruse For a Cure & Fall Festival Fundraising Updates
NEW Degos Disease Website
Amy Gietzen (Board Member) Awarded Advocate of the Year by NSF
First Summer Intern -Mustafa Mahmood
Celeste Freeman OTR/L, CHT (Board Member) provides Scleroderma Inservice
Steffens Medical Leadership speak at NSF Patient Conference
-
June 2024 Newsletter
Cruise For A Cure- Sunday, July 14th Tickets on SALE NOW
June 29th is World Scleroderma Day
Fall Festival & Barbeque: Save the date - Sunday, September 29th
Tribute to Dr. Jessica Ann Pye
Summary: Annual IPE Programming
-
March 2024 Newletter
IPE 2024 Virtual Program Scheduled Wednesday, April 10th
Scleroderma Research Update - Scleroderma in Pigmented Skin Populations
SAVE the DATE- Sunday, July 14th Cruise for a Cure
Degos Disease Foundation New Logo and Research Update
New Board of Director - Welcome Paula Birch Billingsley
Fall Festival scheduled September 29th
-
December 2023 Newsletter
Recap of 8th Annual Fall Gala
Estate of the late Dr. Donald Thurston
American College of Rheumatology Annual Conference
Dr. Jessica Farrell awarded Distinguished Educator Award
Welcoming New Volunteers
The New York Dental Journal published article "Steffens Scleroderma Foundation Interprofessional Education Event" authors David Leader, D.M.D,. M.P.H.; Daniela Bittar, D.D.S.; Evamarie Cole
Mogil's Mobcast
-
September 2023 Newsletter
Fall Gala
Recap of Cruise for a Real Cure 2023
Welcoming a New Board Member
National Scleroderma Annual Conference
Measurements of IPE Impact
-
June 2023 Newsletter
National Scleroderma Month Happenings
2023 Interprofessional Education Forum
Dr. David Leader
Degos Disease Q&A
Research Updates
-
March 2023 Newsletter
The Legacy of the Meenans
2023 Interprofessional Education Forum
Dr. Michael Hughes
Research Updates
-
September 2022 Newsletter
Degos Disease Support NetworkInterprofessional Education Forum
Celeste Freeman receives ASHT Paul Brand Award
Mogil's MobCast
Dr. Michael Allen Joins Steffens Medical Advisory Board
Amy Geitzen presenting at the American College of Rheumatology
Giovanna Fichera, OTD, Research Update
-
June 2022 Newsletter
Interprofessional Education Forum
How does IPE move forward?
The Art of Advocacy Seminar
-
March 2022 Newsletter
NIH Research Study
Degos Disease Patient Experience
Introducing our new Board Member, Bruce Cowan
Student Research Projects
-
November 2021 Newsletter
-
August 2021 Newsletter
-
May 2021 Newsletter
-
January 2021 Newsletter
-
August 2020 Newsletter
Volunteer
Join us as a volunteer and make a difference! Fill out the volunteer form to let us know your specific area of interest.
Support Us
With your support, we're making groundbreaking research happen. Make a difference with your donation today!