Our Research
All of the following scleroderma publications, abstracts, talks, and book chapters were written by, and/or in partnership with someone on our medical leadership team at Steffens Scleroderma Foundation.
Hit the plus sign to expand the section and see all the articles written in that year, hit the minus sign to close the section.
Steffens Scleroderma Foundation Publications
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Systemic pharmacotherapy approaches for the treatment of systemic sclerosis (March 2025) DOI: 10.1080/14656566.2025.2470846
The role of prokinetics in managing gastrointestinal involvement in systemic sclerosis: a systematic literature review (March 2025) DOI: 10.1093/rheumatology/keaf064
Evidence for targeting autonomic dysfunction in systemic sclerosis: A scoping review (March 2025) DOI: 10.1177/23971983241308050
Evaluation of Systemic Sclerosis Primary Heart Involvement and Chronic Heart Failure in the European Scleroderma Trials and Research Cohort (March 2025) DOI: 10.1161/JAHA.124.036730
Endothelial Biomarkers of Systemic Sclerosis-Associated Pulmonary Hypertension (February 2025) DOI: 10.1002/acr.25180 -
Managing gastrointestinal manifestations in systemic sclerosis, a mechanistic approach (June 2024) DOI: 10.1080/1744666X.2024.2320205
Evaluating the Associations Among Dysautonomia, Gastrointestinal Transit, and Clinical Phenotype in Patients With Systemic Sclerosis (June 2024) DOI: 10.1002/acr.25411
Longitudinal trajectories of the Scleroderma Health Assessment Questionnaire (SHAQ) visual analogue scales: a retrospective cohort study (June 2024) DOI: 10.1093/rheumatology/keae667
Systemic sclerosis-related fecal incontinence: a scoping review focusing on a neglected manifestation (June 2024) DOI: 10.1093/rheumatology/keae691
Racial variability in immune responses only partially explains differential systemic sclerosis disease severity (May 2024) DOI: 10.1136/ard-2023-225458
Moving forward together: collaborative landscapes of research in idiopathic inflammatory myopathies and calcinosis (May 2024) DOI: 10.1093/rheumatology/kead331
Sildenafil Versus Placebo for Early Pulmonary Vascular Disease in Scleroderma (SEPVADIS): protocol for a randomized controlled trial (May 2024) DOI: 10.1186/s12890-024-02892-3
The role of comprehensive stress cardiac MRI in autoimmune rheumatic disease: A review (May 2024) DOI: 10.1016/j.ijcha.2024.101381
Oral health in systemic sclerosis: A scoping review (March 2024) DOI: 10.1177/23971983241252899
Spectrum of renal disease in scleroderma other than scleroderma renal crisis: A review of the literature (February 2024) DOI: 10.5414/CN111243
A Scleroderma and Raynaud’s UK (SRUK) national survey to explore rheumatologists’ awareness, approaches to diagnosis and management and training needs within systemic sclerosis (January 2024) DOI: 10.1093/rap/rkae152
2023 American College of Rheumatology (ACR)/American College of Chest Physicians (CHEST) Guideline for the Treatment of Interstitial Lung Disease in People with Systemic Autoimmune Rheumatic Diseases (January 2024) DOI: 10.1002/acr.25348 -
Systemic pharmacological treatment of digital ulcers in systemic sclerosis: a systematic literature review (December 2023) DOI: 10.1093/rheumatology/kead289
Investigational drugs for the treatment of scleroderma: what’s new? (August 2023) DOI: 10.1080/13543784.2023.2242762
Non-surgical local treatments of digital ulcers in systemic sclerosis: a systematic literature review (July 2023) DOI: 10.1016/j.semarthrit.2023.152267
Surgical management of digital ulcers in systemic sclerosis: A systematic literature review (July 2023) DOI: 10.1016/j.semarthrit.2023.152266
Domain reporting in Systemic Sclerosis-Related Digital Ulcers: An OMERACT Scoping Review (July 2023) DOI: 10.1016/j.semarthrit.2023.152220
Domain reporting in systemic sclerosis-related Raynaud’s phenomenon: An OMERACT scoping review (July 2023) DOI: 10.1016/j.semarthrit.2023.152208
The role of skin ultrasound in systemic sclerosis: looking below the surface to understand disease evolution (July 2023) DOI: 10.1016/S2665-9913(23)00100-5
‘I turned in my man card’: a qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis (June 2023) DOI: 10.1093/rheumatology/keac585
Primary Cardiac Involvement in Systemic Sclerosis: Best Approach to Diagnosis (May 2023) DOI: 10.1016/j.rdc.2023.01.018
Patient Experience of Systemic Sclerosis-Related Calcinosis: An International Study (May 2023) DOI: 10.1016/j.rdc.2023.01.017
Expanding the Treatment Team: What Is the Role for Occupational Therapy, Physical Therapy, Wound Care, and Nutritional Support in Systemic Sclerosis? (May 2023) DOI: 10.1016/j.rdc.2023.01.009
Multi-Organ System Screening, Care, and Patient Support in Systemic Sclerosis (May 2023) DOI: 10.1016/j.rdc.2023.01.002
Studying the Role of C5-Inhibition Therapy in Scleroderma Renal Crisis-Induced Thrombotic Microangiopathy - A Review of Literature (May 2023) DOI: 10.1016/j.semarthrit.2023.152256
Management of systemic sclerosis: British Society for Rheumatology guideline scope (March 2023) DOI: 10.1093/rap/rkad022
Management of Patients with Systemic Sclerosis-Associated Interstitial Lung Disease: A Focus on the Role of the Pharmacist (March 2023) DOI: 10.2147/IPRP.S399518
Nailfold capillaroscopy (March 2023) DOI: 10.1016/j.berh.2023.101849 -
Evaluation of hypertension in systemic sclerosis and systemic lupus erythematosus overlap (December 2022) DOI: 10.1177/23971983221122673
Agreement Between Physician Evaluation and the Composite Response Index in Diffuse Cutaneous Systemic Sclerosis (November 2022) DOI: 10.1002/acr.24638
Computed Tomography of the Chest to Screen for Interstitial Lung Disease in Patients with Systemic Sclerosis at Expert Scleroderma Centers in the United States (November 2022) DOI: 10.1002/acr2.11434
World Health Organization (WHO) International Classification of Functioning, Disability and Health (ICF) Core Set Development for Interstitial Lung Disease (October 2022) DOI: 10.3389/fphar.2022.979788
Novel therapies and innovation for systemic sclerosis skin ulceration (August 2022) DOI: 10.1016/j.berh.2022.101813
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program (August 2022) DOI: 10.1186/s40814-022-00994-5
Improvement with time of vascular outcomes in systemic sclerosis: a systematic review and meta-analysis study (July 2022) DOI: 10.1093/rheumatology/keab850
Practical management of Raynaud’s phenomenon - a primer for practicing physicians (July 2022) DOI: 10.1097/BOR.0000000000000877
Ageing with Interstitial lung disease: preserving health and well being (April 2022) DOI: 10.1097/MCP.0000000000000880
Expanding Personalized, Data-Driven Dermatology: Leveraging Digital Health Technology and Machine Learning to Improve Patient Outcomes (March 2022) DOI: 10.1016/j.xjidi.2022.100105
Baseline characteristics of systemic sclerosis patients with restrictive lung disease in a multi-center US-based longitudinal registry (February 2022) DOI: 10.1111/1756-185X.14253
Imaging techniques for assessment of vascular involvement in systemic sclerosis (February 2022) DOI: 10.1097/BOR.0000000000000901 -
ANCA in systemic sclerosis, when vasculitis overlaps with vasculopathy: a devastating combination of pathologies (December 2021) DOI: 10.1093/rheumatology/keab278
Effect of Coping Strategies on Patient and Physician Perceptions of Disease Severity and Disability in Systemic Sclerosis (October 2021) DOI: 10.3899/jrheum.201612
Clinical Bedside Tools to Assess Systemic Sclerosis Vasculopathy (October 2021) DOI: 10.3899/jrheum.201234
Similarities between COVID-19 and systemic sclerosis early vasculopathy (October 2021) DOI: 10.1016/j.autrev.2021.102899Dysphagia, Reflux and Related Sequelae Due to Altered Physiology in Scleroderma (August 2021) DOI: 10.3748/wjg.v27.i31.5201
Spiera et al. – Lenabasum in Diffuse Cutaneous Systemic Sclerosis: RESOLVE-1 Design (August 2021) DOI: 10.55563/clinexprheumatol/i80zh7
A Practical Approach to the Management of Digital Ulcers in Patients With Systemic Sclerosis (July 2021) DOI: 10.1001/jamadermatol.2021.1463
Predictive Significance of Serum Interferon-Inducible Protein Score for Response to Treatment in Systemic Sclerosis-Related Interstitial Lung Disease (June 2021) DOI: 10.1002/art.41627
Exercise as a multi-modal disease-modifying medicine in systemic sclerosis (June 2021) DOI: 10.1016/j.berh.2021.101695
Clinical characteristics, visceral involvement, and mortality in at-risk or early diffuse systemic sclerosis (June 2021) DOI: 10.1186/s13075-021-02548-1
Does sublingual microscopy correlate with nailfold videocapillaroscopy in systemic sclerosis? (June 2021) DOI: 10.1007/s10067-020-05495-5
A Comprehensive Framework for Navigating Patient Care in Systemic Sclerosis (G-FoRSS Global Response) (June 2021) DOI: 10.1016/j.berh.2021.101707
The role of ultrasound in systemic sclerosis (April 2021) DOI: 10.1177/2397198320970394
The Frequency of Raynaud’s Phenomenon, Very Early Diagnosis of Systemic Sclerosis, and Systemic Sclerosis in a Large Veteran Health Administration Database (April 2021) DOI: 10.1186/s41927-021-00209-z
Reporting items for capillaroscopy in clinical research on musculoskeletal diseases (March 2021) DOI: 10.1093/rheumatology/keaa457
Ultrasonographic imaging of systemic sclerosis digital ulcers: A systematic literature review and validation steps (March 2021) DOI: 10.1016/j.semarthrit.2021.02.008
Raynaud Phenomenon in Systemic Sclerosis: Does Digital Thermal Monitoring Correlate to Specific Nailfold Videocapillaroscopy Abnormalities? (February 2021) DOI: 10.3899/jrheum.191371
Digital Ulcers in Systemic Sclerosis (January 2021) DOI: 10.1016/j.lpm.2021.104064
Identifying barriers and facilitators to physical activity for people with scleroderma (January 2021) DOI: 10.1080/09638288.2020.1742391 -
Significant weight loss in systemic sclerosis: a study from the EULAR Scleroderma Trials and Research (EUSTAR) database (August 2020) DOI: 10.1136/annrheumdis-2020-217035
Patient experiences of digital ulcer development and evolution in systemic sclerosis (August 2020) DOI: 10.1093/rheumatology/keaa037
Racial differences in systemic sclerosis disease presentation: a European Scleroderma Trials and Research group study (July 2020) DOI: 10.1093/rheumatology/kez486
Multicenter Qualitative Study Exploring the Patient Experience of Digital Ulcers in Systemic Sclerosis (May 2020) DOI: 10.1002/acr.24127
Does hand involvement in systemic sclerosis limit completion of patient-reported outcome measures? (May 2020) DOI: 10.1007/s10067-020-05467-9
Big data in systemic sclerosis: Great potential for the future (May 2020) DOI: 10.1177/2397198320929805
The Burden of Neurosarcoidosis: Essential Approaches to Early Diagnosis and Treatment (May 2020) DOI: 10.1055/s-0040-1710576
Patient-reported outcome measures in systemic sclerosis-related interstitial lung disease for clinical practice and clinical trials (April 2020) DOI: 10.1177/2397198320904178
Raynaud phenomenon and digital ulcers in systemic sclerosis (April 2020) DOI: 10.1038/s41584-020-0386-4
Gender-related differences in systemic sclerosis (April 2020) DOI: 10.1016/j.autrev.2020.102494
Standardisation of nailfold capillaroscopy for the assessment of patients with Raynaud’s phenomenon and systemic sclerosis (March 2020) DOI: 10.1016/j.autrev.2020.102458
Small intestinal bacterial overgrowth in systemic sclerosis (March 2020) DOI: 10.1177/2397198319863953
Consensus-based evaluation of dermatoscopy versus nailfold videocapillaroscopy in Raynaud’s phenomenon… (March 2020) PMID: 32865167
Musculoskeletal hand involvement in systemic sclerosis (February 2020) DOI: 10.1016/j.semarthrit.2019.11.003
Digital ulcer debridement in systemic sclerosis: a systematic literature review (January 2020) DOI: 10.1007/s10067-019-04924-4
HLA and autoantibodies define scleroderma subtypes and risk in African and European Americans and suggest a role for molecular mimicry (January 2020) DOI: 10.1073/pnas.1906593116 -
Raynaud’s phenomenon (November 2019) DOI: 10.12968/hmed.2019.80.11.658
Linear scleroderma “en coup de sabre” with extensive brain involvement—Clinicopathologic correlations and response to anti-Interleukin-6 therapy (October 2019) DOI: 10.1186/s13023-019-1015-7
Systemic sclerosis (September 2019) DOI: 10.12968/hmed.2019.80.9.530
Protean Neurologic Manifestations of Two Rare Dermatologic Disorders: Sweet Disease and Localized Craniofacial Scleroderma (August 2019) DOI: 10.1007/s11910-019-0929-8
Microparticles in systemic sclerosis: Potential pro-inflammatory mediators and pulmonary hypertension biomarkers (July 2019) DOI: 10.1111/resp.13500
Outcomes of patients with systemic sclerosis treated with rituximab in contemporary practice: a prospective cohort study (July 2019) DOI: 10.1136/annrheumdis-2018-214816
Generation of a Core Set of Items to Develop Classification Criteria for Scleroderma Renal Crisis Using Consensus Methodology (June 2019) DOI: 10.1002/art.40809
Development and validation of the Scleroderma Clinical Trials Consortium Damage Index (SCTC-DI) (June 2019) DOI: 10.1136/annrheumdis-2018-214764
Exploring the patient experience of digital ulcers in systemic sclerosis (May 2019) DOI: 10.1016/j.semarthrit.2018.08.001 -
Vascular Leaking, a Pivotal and Early Pathogenetic Event in Systemic Sclerosis: Should the Door Be Closed? (September 2018) DOI: 10.3389/fimmu.2018.02045
Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud’s Phenomenon in Systemic Sclerosis (September 2018) DOI: 10.1002/acr.23475
The Patient Experience of Raynaud’s Phenomenon in Systemic Sclerosis (August 2018) DOI: 10.1093/rheumatology/key026
Implications of endothelial shear stress on systemic sclerosis vasculopathy and treatment (August 2018) DOI: 10.55563/clinexprheumatol/7ulgbj
Patient Perceptions of the Raynaud’s Condition Score Diary Provide Insight Into Its Performance in Clinical Trials of Raynaud’s Phenomenon: Comment on the Article by Denton et al. (June 2018) DOI: 10.1002/art.40481
Wildflowers abundant in the garden of systemic sclerosis research, while hopeful exotics will one day bloom (March 2018) DOI: 10.1093/rheumatology/kex420
Haematopoietic stem cell transplantation in systemic sclerosis (March 2018) DOI: 10.1136/rmdopen-2017-000533
Changes in hemodynamic classification over time are common in systemic sclerosis-associated pulmonary hypertension: insights from the PHAROS cohort (March 2018) DOI: 10.1177/2045893218757404
Gastrointestinal and Hepatic Disease in Systemic Sclerosis (February 2018) DOI: 10.1016/j.rdc.2017.09.002 -
Clinical and serological features of systemic sclerosis in a multicenter African American cohort: Analysis of the genome research in African American scleroderma patients clinical database (December 2017) DOI: 10.1097/MD.0000000000008980
Clinical characteristics and survival of systemic sclerosis patients with pulmonary hypertension and elevated wedge pressure: Observations from the PHAROS cohort (October 2017) DOI: 10.1111/resp.13067
Patient participation in patient-reported outcome instrument development in systemic sclerosis (July 2017) PMID: 28516884
Digital ulcers in systemic sclerosis (January 2017) DOI: 10.1093/rheumatology/kew047
Reliance on Pulmonary Function Tests in Assessment of Systemic Sclerosis Patients for Pulmonary Hypertension: Comment on the Article by Antoniou et al. (January 2017) DOI: 10.1002/art.39928 -
BSR and BHPR guideline for the treatment of systemic sclerosis (October 2016) DOI: 10.1093/rheumatology/kew224
Current and future direction in the management of scleroderma (September 2016) DOI: 10.1007/s00403-016-1647-6
Differential diagnosis of critical digital ischemia in systemic sclerosis: Report of five cases and review of the literature (August 2016) DOI: 10.1016/j.semarthrit.2016.05.001
Association Between Initial Oral Therapy and Outcomes in Systemic Sclerosis-Related Pulmonary Arterial Hypertension (March 2016) DOI: 10.1002/art.39478
Raynaud’s phenomenon (January 2016) DOI: 10.1016/j.berh.2016.04.001
Systemic sclerosis: The need for structured care (January 2016) DOI: 10.1016/j.berh.2016.04.004 -
Consensus best practice pathway of the UK Scleroderma Study Group: digital vasculopathy in systemic sclerosis (November 2015) DOI: 10.1093/rheumatology/kev201
Cardiac troponin testing in idiopathic inflammatory myopathies and systemic sclerosis-spectrum disorders: biomarkers to distinguish between primary cardiac involvement and low-grade skeletal muscle disease activity (May 2015) DOI: 10.1136/annrheumdis-2014-206812
Outcome Measures for Clinical Trials in Interstitial Lung Diseases (May 2015) DOI: 10.2174/1573398X1166615061918352
Protective role of interleukin-6 in systemic sclerosis gastrointestinal tract involvement: case report and review of the literature (April 2015) PMID: 26339896 -
Connective tissue disease related interstitial lung diseases and idiopathic pulmonary fibrosis: provisional core sets of domains and instruments for use in clinical trials (May 2014) DOI: 10.1136/thoraxjnl-2013-204202
Reconciling healthcare professional and patient perspectives in the development of disease activity and response criteria in connective tissue disease-related interstitial lung diseases (April 2014) DOI: 10.3899/jrheum.131251
A survey of dentists’ knowledge and attitudes with respect to the treatment of scleroderma patients (April 2014) DOI: 10.1097/RHU.0000000000000102
The primary care physician in the early diagnosis of systemic sclerosis: the cornerstone of recognition and hope (January 2014) DOI: 10.1097/MAJ.0b013e3182a55d24 -
Measuring response in the gastrointestinal tract in systemic sclerosis (November 2013) DOI: 10.1097/01.bor.0000434668.32150.e
Concomitant sarcoidosis and a connective tissue disease: review of the clinical findings and postulations concerning their association (September 2013) DOI: 10.1016/j.rmed.2013.01.004
Treatment of early diffuse systemic sclerosis skin disease (April 2013) PMID: 23910619
Understanding itch in systemic sclerosis in order to improve patient quality of life (April 2013) PMID: 23910614 -
International Classification of Functioning, Disability and Health Core Set construction in systemic sclerosis and other rheumatic diseases: a EUSTAR initiative (December 2012) DOI: 10.1093/rheumatology/kes185
Is there evidence for vasculitis in systemic sclerosis? (November 2012) DOI: 10.1007/s11926-012-0296-9
Systemic sclerosis (September 2012) DOI: 10.12968/hmed.2012.73.9.509
Update on the profile of the EUSTAR cohort: an analysis of the EULAR Scleroderma Trials and Research group database (August 2012) DOI: 10.1136/annrheumdis-2011-200742
Treatment of systemic sclerosis complications: what to use when first-line treatment fails–a consensus of systemic sclerosis experts (July 2012) DOI: 10.1016/j.semarthrit.2012.01.003 -
Experience of mycophenolate mofetil in 10 patients with autoimmune-related interstitial lung disease demonstrates promising effects (May 2009) DOI: 10.1097/MAJ.0b013e31818d094b
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Normal bowel function restored after oxygen therapy in systemic sclerosis and colonic inertia (August 2007) DOI: Not available
Scleroderma and dentistry: every dentist is a scleroderma specialist (March/April 2007) DOI: Not available
Steffens Scleroderma Foundation Abstracts
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A Thematic Analysis of The Impact of Systemic Sclerosis on Patient Experiences Across Two Age Groups. American Academy of Dermatology. 2025.
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The Patient as the Primary Educator for a Scleroderma-Focused Interprofessional Education Event: Encouraging Patient Empowerment. Systemic Sclerosis World Congress. Poster. 2024.
Acute Kidney Injury in Systemic Sclerosis Beyond Scleroderma Renal Crisis: A Case-Control Study. Journal of clinical rheumatology: practical reports on rheumatic & musculoskeletal diseases. 2024.
Comparative Analysis of Clinical Features and Outcomes in Late Onset vs. Early Onset Scleroderma Renal Crisis - A Multicenter Study. ACR. 2024.
Breaking Ground: Super-responders to Prostacyclin Therapy in Systemic Sclerosis-associated Pulmonary Arterial Hypertension – A Case Series. ACR. 2024. -
Increasing Collaboration, Education, & Awareness of Scleroderma Through an Interprofessional Education Program: Emphasizing the Importance of a Multidisciplinary Team & the Patient as the Primary Educator. American College of Rheumatology Convergence. Poster. 2023.
Utilization of the Interprofessional Education Concept through Patient Empowerment as a means to Increase Early Diagnosis for Individuals Living with Scleroderma. National Scleroderma Foundation Conference. Poster. 2023.
Scleroderma Renal Crisis Treatment with C5 inhibitor Eculizumab: A Review of Literature. EULAR. 2023.
Your Vital Role in Educating Future Healthcare Professionals: The Art of Advocacy. National Scleroderma Foundation Conference. Speaker. 2023. -
The Journey to Collaborative Care and Patient-Centric Educational Opportunities for a Scleroderma Patient. ACR Convergence. 2022.
The Spectrum of Renal Manifestations in Scleroderma: A Review of Literature. Congress of Clinical Rheumatology West. 2022.
Positively Impacting Patients with Scleroderma Through Interprofessional Education: An Emerging Approach. Systemic Sclerosis World Congress. 2022.
Correlates of Cancelled Healthcare Appointments in Patients with Systemic Sclerosis During the COVID-19 Pandemic. Systemic Sclerosis World Congress. 2022.
Patient-Centric Interprofessional Education as a Means to Increase Health Professional Students’ Awareness and Understanding of Scleroderma. EULAR. 2022.
Correlates of Cancelled Healthcare Appointments in Patients with Systemic Sclerosis During the COVID-19 Pandemic. EULAR. 2022.
Patients Education Future Health Care Professionals: The Art of Advocacy. National Scleroderma Conference. 2022. -
Pandemic and Patients: Examining Health-Related Behaviors of Patients with Systemic Sclerosis During the COVID-19 Pandemic Abstract 1613. ACR Convergence. 2021.
Scleroderma: A Model Disease for Interprofessional Education. National Scleroderma Foundation. 2021.
Health Care: Interprofessional Education: A Patient Centric, Collaborative Approach. National Scleroderma Foundation. 2021.
Acute gastric dilation: A rare complication of scleroderma. American College of Gastroenterology. Annual Scientific Meeting. 2021.
Review of gastrointestinal manifestations of Kohlmeier-Degos disease. American College of Gastroenterology Annual Scientific Meeting. 2021.
Gastrointestinal Kohlmeier-Degos disease: What a dermatologist needs to know. Annual Meeting of the American Academy of Dermatology. 2021. -
Review of gastrointestinal manifestations of Kohlmeier-Degos disease. Abstract 0093. 2020 ACR Convergence. 2020.
Pathway to Systemic Sclerosis: Concerning Patients’ Experiences During the Diagnostic Process. Abstract 1394. 2020 ACR Convergence. 2020.
The Diagnosis of Systemic Sclerosis as a Traumatic Experience: Patients’ Reactions to the Diagnostic Process. Abstract 1128. 2020 ACR Convergence. 2020. -
Clinical Pharmacist As Part of the Interprofessional Team Improves Quality of Care in Patients with Rheumatic Disease. Abstract 215. 2017 ACR/ARHP Annual Meeting. 2017.
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A Normal Pulmonary Diffusion Capacity Is Rare in Pulmonary Artery Hypertension in Systemic Sclerosis. 2016 ACR/ARHP Annual Meeting. 2016.
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Laser Speckled Imaging and Videomicroscopy Assessment of Sublingual Perfusion in Systemic Sclerosis and Healthy Controls. Abstract Number: 2979. 2015 ACR/ARHP Annual Meeting. 2015.
Assessment of Sublingual Frenulum Perfusion in Systemic Sclerosis. Abstract Number: 2980. 2015 ACR/ARHP Annual Meeting. 2015. -
Development of a “Renal Crisis Prevention Card” As an Educational Tool Aimed at Improving Outcomes in High-Risk Patients with Systemic Sclerosis. Abstract Number: 2716. 2014 ACR/ARHP Annual Meeting. 2014.
Assessment of Sublingual Abnormalities in Systemic Sclerosis. Abstract Number: 1694. 2014 ACR/ARHP Annual Meeting. 2014.
Steffens Scleroderma Foundation Book Chapters
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Shapiro, L, Saketkoo, L.A., Steen, V.D. in Pigmented Ethnic Skin and Imported Dermatoses, Springer International Publishing, 2018. Scleroderma in Pigmented Populations, 471-480.
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Shapiro LS. Conn's Current Therapy. Philadelphia: Saunders; 1993. Polymyalgia and Giant Cell Arthritis, 975-976p.
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Shapiro LS. Conn's Current Therapy. Philadelphia: Saunders; 1992. Polymyalgia and Giant Cell Arthritis, 931-932p.
Steffens Scleroderma Foundation Talks/Presentations
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Interprofessional Education Event. NYS Society of Physician Assistants. Booth. November 2024.
Interprofessional Education Event: A Collaborative Care Team Approach. National Scleroderma Foundation Rochester Patient Education Forum. Speaker. October 2024. -
Patrick Mroczkowski Memorial Lecture, Albany Medical College. “My Odyssey with Degos Disease.” 2023.
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20th Bi-Annual National Scleroderma Conference. Opening Keynote – Amy Gietzen, Closing Keynote – Lee Shapiro. September 16 - 17, 2022.
Additional resources for other publications & articles written on scleroderma
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Scleroderma Patient-centered Intervention Network (SPIN)
SPIN conducts studies and develops online support programs to help patients manage symptoms, mental health, and daily challenges. SPIN collaborates with researchers, healthcare providers, and patient organizations to improve quality of life.
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PubMed from the United States National Library of Medicine at NIH
PubMed is a free online database that provides access to millions of research articles, including studies on medicine, healthcare, and related fields. PubMed is widely used by researchers, healthcare professionals, and the public to find peer-reviewed medical information.
Visit DegosDisease.org to read every known article about Degos disease